Huntington Study Group Announces Positive Topline Results for Virtual Unified Huntington’s Disease Rating Scale® (vUHDRS®) Study

Aug 15, 2023 | Business

 The Huntington Study Group (HSG) together with its wholly owned subsidiary, HSG Clinical Research, Inc., a world leader in conducting clinical trials for Huntington’s disease (HD), today announces positive topline results from its Virtual Unified Huntington’s Disease Rating Scale® (vUHDRS®) observational study. This novel, innovative study assessed the reliability of virtual use of the HSG’s standard assessment tool, the Unified Huntington’s Disease Rating Scale (UHDRS®).

The analysis of the data was consistent with key portions of the scale showing excellent reliability. Specifically, the modified motor portion and the primary outcome measure of stage, the Total Functional Capacity, had high intraclass correlation coefficients (ICCs). In addition, all other functional, cognitive, and behavioral sections had ICCs consistent with excellent reliability. The vUHDRS® study may assist with the development of remote and hybrid trials thereby reducing participant burden and increasing availability of data.

The vUHDRS® study, funded and sponsored by Huntington Study Group, was inspired by the necessity to break down barriers, and allow remote assessments in HD trials. The COVID-19 pandemic accelerated vUHDRS™ development. The study was conducted at 16 HSG sites in the United States. Fifty-nine participants completed the study with about half using their own devices and the other half using HSG-provided tablets and portable Wi-Fi connections.

“These results are exciting for clinical research and patient communities. Clinical research in Huntington’s disease is one step closer to being more accessible to a larger population and offers the opportunity for more access to remote care in HD,” said Samuel Frank, MD, Associate Professor of Neurology and Director of the HDSA Center of Excellence at Beth Israel Deaconess Medical Center, and Principal Investigator of the vUHDRS® study. “The lessons learned and data from this study supports our belief that this key endpoint for HD studies can be effectively delivered in a virtual setting, thereby improving overall care and development of treatments for our patients and families impacted by HD.”

The vUHDRS® results will be presented at the International Congress of Parkinson’s Disease and Movement Disorders® in Copenhagen, Denmark, August 27-31, 2023, and at HSG’s annual meeting in Phoenix, AZ, November 2-4, 2023.

About the Unified Huntington’s Disease Rating Scale (UHDRS®)
The HSG developed and owns the UHDRS® which was established in 1996 to assess motor, cognition, behavior, and function in patients with Huntington’s disease in a standardized manner. The UHDRS® in part or in whole is commonly used as the primary endpoint in many HD trials. To learn more about the tool including licensing information, visit https://huntingtonstudygroup.org/uhdrs/.

About Huntington’s Disease
Huntington’s disease (HD) is a progressive hereditary neurodegenerative disease characterized by movement disorders, psychiatric difficulties, and cognitive changes. HD symptoms usually present in middle adult life but can begin at any age. HD is a rare disorder — about 200,000 people worldwide have been diagnosed but many more are at risk for inheriting the disease from a parent. Huntington’s disease impacts people of all genders, races, and ethnicities. While symptomatic treatments are available, a cure for HD has not yet been discovered.

About Huntington Study Group / HSG Clinical Research
The Huntington Study Group (HSG), a not-for-profit organization founded in 1993 in Rochester, NY, and its wholly owned subsidiary, HSG Clinical Research, Inc., designs and conducts clinical trials through the world’s first and largest collaborative network with thousands of members at more than 130 HSG credentialed research sites worldwide. HSG is dedicated to improving the lives of people impacted by Huntington’s disease through research, education, and collaboration. For more information, visit www.huntingtonstudygroup.org.

Huntington Study Group
Kristin Keyes
800-487-7671
https://huntingtonstudygroup.org

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Hong Kong – DEVB’s response to the DEP’s decision on EIA Report on Technical Study on Partial Development of Fanling Golf Course Site – Feasibility Study

May 12, 2023 | International

DEVB’s response to the DEP’s decision on EIA Report on Technical Study on Partial Development of Fanling Golf Course Site – Feasibility Study

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     In response to the Director of Environmental Protection’s (DEP) conditional approval of the Environmental Impact Assessment (EIA) Report on the Technical Study on Partial Development of Fanling Golf Course Site – Feasibility Study, a spokesman of the Development Bureau (DEVB) said today (May 11):

     The Government gazetted the draft Fanling/Sheung Shui Extension Area Outline Zoning Plan (the draft plan) last year proposing the development of public housing with 12 000 units at the northernmost portion of the 32 hectares of land east of Fan Kam Road in Fanling Golf Course. The southern portion of the site would be used for conservation and recreational use, which would be opened for public enjoyment under appropriate regulation.

     Following the approval of the EIA report, the Town Planning Board (TPB) will arrange public hearings for the representations and opinions submitted by the public on the draft plan. In order to allow sufficient time for the TPB to complete the hearing and deliberation process, the Planning Department will recommend to the TPB to seek permission, according to the Town Planning Ordinance, for extension of the deadline for submission of the draft plan to the Executive Council by six months to November 30, 2023.

     The DEVB noted that the DEP’s approval comes with certain conditions, including that the Civil Engineering and Development Department (CEDD), as the project proponent, should review the layout design, building height and development density of the public housing development, with a view to preserving the woodland within the housing site as far as possible and minimising the impact on tree preservation, landscape and visual aspects arising from the housing development. The CEDD is also required to submit to the DEP for approval, prior to the development, documents on the proposed revised layout design of the public housing development and tree preservation, landscape and visual aspects, etc.

     The CEDD will work with the relevant departments to follow up on the DEP’s requirements and report to the TPB. Although the layout and development parameters of the public housing are subject to review, it remains the intention of the Government to develop public housing at the northernmost portion of the area. 

     Irrespective of the progress of the town planning process, the short term tenancy covering the 32 hectares of land will expire on August 31, 2023, and the Government will take back the relevant land on September 1, 2023, as planned. The Leisure and Cultural Services Department (LCSD) will be responsible for the management and maintenance of the land, including the northernmost portion earmarked for public housing development until such is handed over to the CEDD for commencement of works. The LCSD will make separate announcement on the management and detailed opening arrangement. Separately, as the Government previously stated, in case the Hong Kong Golf Club requires temporary additional land in future for supporting the organisation of major events, the relevant departments would be happy to provide appropriate assistance where possible.

Pioneering Study of Leaders Across Health & Wellbeing Industries Reveals Unique Opportunity

May 9, 2023 | Business

 Wisdom Works Group released a pioneering report of leadership across the health and wellbeing industries. “Leading in the Health and Wellbeing Industry 2023: Are we walking our talk?” reveals a unique opportunity for these leaders to enhance wellbeing for themselves and the people and organizations they serve. The report findings are a clarion call for the health and wellbeing industry to make thriving a standard of success for leadership and industry impact.

The first study of its kind, Wisdom Works sought to determine: As leaders of health and wellbeing industries, are we thriving personally? Are we advancing wellbeing through how we lead? Wellbeing has become a driver of brand performance, workforce engagement, and social and environmental change—and is one of the central challenges and opportunities of leadership today. The wellbeing leadership agenda is even more crucial for organizations in the health and wellbeing industry because it is an industry that the rest of the world looks to for health and wellbeing solutions and advice.

“Leading in the Health & Wellbeing Industry 2023” represents a survey of 841 leaders spanning 71 countries across every region of the world and impacting a reported 19 million people. Leaders completed a survey examining their experience of their organization, their everyday stressors, and 19 psychometrics of wellbeing leadership addressing their psychological wellbeing and leadership impact. The health and wellbeing industry was defined by three sectors: the Global Wellness Economy, Healthcare, and Human Potential & Development.

Overall, the nine key findings which emerged from this study uncover that leaders across the health and wellbeing industry are collectively reporting that they are not as internally well-resourced as they could be to handle the complexities and challenges they face. With leaders as a linchpin for people’s experience at work, this timely study brings to light the need for integrating the science and practices of wellbeing into leader development as a strategy for improving leadership, work culture, and industry impact.

The study found that middle- and first-line managers are reporting lower wellbeing leadership scores than other leadership levels. This highlights a critical opportunity to empower wellbeing leadership in middle and first-line managers as an investment in the industry’s future.

“We are in the middle of a wellbeing revolution,” says Wisdom Works’ CEO Renee Moorefield. “The interest in wellbeing has never been higher and therefore the opportunity for health and wellbeing companies to positively impact the world has never been greater. Prioritizing wellbeing leadership is key to effectively and sustainably meeting this increased global interest. It is only by putting our own mask on first that we can authentically support another’s ability to thrive.”

Wisdom Works Group
Kate McIver
970-639-0495
www.bewellleadwell.com/

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Recent Study by Denver Capital Identifies Three Key Traits Shared Among Successful Investors

May 2, 2023 | Business

 A recent study conducted by Denver Capital, a provider of alternative investments for high-net-worth individuals and sophisticated investors founded by Raj Sukkersudha, has found that despite differences in age and investment amount, 125 interviewed investors shared three key traits in common.

The study, which interviewed a diverse group of investors ranging in age from 25 to 65 and with investment amounts ranging from £10,000 to £500,000, sought to identify commonalities among successful investors. Through a series of in-depth interviews and surveys, researchers identified three key traits that appeared consistently across the sample group.

The first trait identified was a willingness to take calculated risks. According to the study’s findings, successful investors were more likely to take calculated risks in their investment decisions, rather than relying solely on conservative investments. However, these risks were always carefully researched and evaluated before being taken.

The second trait identified was a long-term investment outlook. Successful investors were found to have a patient and strategic approach to investing, with a focus on long-term growth and not being swayed by short-term market fluctuations.

The third and final trait identified was a commitment to ongoing education and self-improvement. Successful investors were found to prioritise continuous learning about the market, trends, and investment strategies, often seeking out new information and educational opportunities.

“As a firm, we were thrilled to see these three common traits emerge among such a diverse group of investors,” said Raj Sukkersudha, Principal and Founder of Denver Capital. “By incorporating these traits into our investment strategies, we believe we can continue to deliver strong results for our clients.”

The full results of the study will be sent to clients with the next monthly newsletter.

Denver Capital
Raj Sukkersudha
+44 8451092909
https://denver.capital

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Landmark Study on Taiwan Sentiment Among Americans

Apr 9, 2023 | Business

Taiwan Future Foundation launches national study intended to better understand Americans awareness and sentiment of Taiwan

Cincinnati, OH, USA – WEBWIRE –

Coinciding with the arrival of Taiwans president Tsai Ing-wen in the U.S. last Thursday, Taiwan Future Foundation (TFF) announces the findings of their national research study. As tensions between Taiwan, China and the U.S. increase, Taiwan Future Foundations study sought to quantify American sentiment and awareness of Taiwan.

Coinciding with the arrival of Taiwans president Tsai Ing-wen in the U.S. last Thursday, Taiwan Future Foundation (TFF) announces the findings of their national research study. As tensions between Taiwan, China and the U.S. increase, Taiwan Future Foundations study sought to quantify American sentiment and awareness of Taiwan.

Its our understanding that this is the first research study of this magnitude conducted to quantify Americans overall understanding of Taiwan, said Taiwan Future Foundation founder Dr. CT Lee. It was not surprising to me that the data indicated Americans have a low level of familiarity with Taiwan. Over 70% of Americans are unfamiliar with Taiwans global role, much less the products that impact their everyday lives like iPhones or the various components in their cars. At TFF, we believe that if Americans were more aware of how many Taiwanese products they touched every day, that the sentiment for the country would change. Our statistically relevant study proved this.

The results establish the first ever benchmark for Americans current familiarity of Taiwan and their opinions regarding the U.S. government and its responsibility to protect Taiwan. For example, 69% believe that the U.S. should establish formal diplomatic relations with Taiwan.

The study then digs more deeply to understand what could boost overall perceptions and understanding of Taiwan. When research respondents were presented with specific statements about Taiwan, TFF was able to identify information that shifted American sentiments by over 75% regarding the importance of Taiwan and the value of stability and security in the region.

This quantitative poll was conducted among a representative sample of 1,201 adults in the United States with the study completed in the fourth quarter of 2022. A copy of the study is available for free on TFFs website at TaiwanFuture.com.

For more Information, please contact TFF Director, Michael Lee, 513.284.8800

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About Taiwan Future Foundation
Amidst the increasing tensions between Taiwan and escalating Chinese military exercises, Taiwan Future Foundation (TFF) seeks to improve the security of Taiwan and stability in the region. TFF was founded in 2022 by Dr. CT Lee, Dr. Lee who has been an active advocate for Taiwan issues for over 30 years. TFF is a non-profit, independent, non-partisan research-based organization similar to Pew Research or Gallup Poll with the mission of supporting the future of Taiwan and its people through educational research and public education.