Author: trishahartley75

Alport Syndrome Foundation and Pulse Infoframe are pleased to announce that the advocacy group for Alport syndrome, a rare kidney disease, will be joining the National Kidney Foundation (NKF) Patient Network. Powered by Pulse Infoframe’s healthie™ platform, the NKF Patient Network fosters data collaboration among patient advocacy groups with kidney disease. This in turn helps researchers and drug developers advance research by collecting real-world evidence across multiple kidney diseases. Pulse Infoframe is committed to rare kidney conditions, and it is only through global collaboration that the challenges communities like the Alport Syndrome Foundation face can be solved. Low case numbers, ... Read more