Author: russelluxg

EU Disability Strategy to improve the lives of people living with a rare disease

EURORDIS-Rare Diseases Europe welcomes the adoption by the European Commission of the Strategy for the Rights of Persons with Disabilities 2021-2030 , as part of the European Union’s commitment to promoting, protecting and ensuring the full enjoyment of human rights by individuals with disabilities and complex needs. This Strategy is of particular importance to people living with a rare disease and is extremely timely as the coronavirus pandemic continues to exacerbate vulnerabilities.  Many people with rare diseases live with motor, sensorineural or intellectual impairments and face serious challenges in their activities of daily living, including personal care and other essential ... Read more